June 7 is World Tourette Awareness Day. Here we discuss four little known facts about Tourette Syndrome.
Nearly one in every 162 children have Tourette Syndrome. In the United States, only about 0.3% children aged between six and seventeen have been diagnosed, which suggests that nearly half of the children who have Tourette’s are not diagnosed.
Tourette Syndrome is a nervous system condition, also known as a Tic Disorder. People with Tourette Syndrome have tics. These tics can manifest themselves as large body movements, vocal sounds, simple body tics, or even complex patterned tics involving multiple parts of the body.
Here are four little known facts about Tourette Syndrome.
1. Often accompanied by other disorders
Up to 86% of children diagnosed with Tourette Syndrome have other mental, behavioral, or developmental disorders. Among these are ADHD, anxiety, learning disability, autism spectrum, and obsessive-compulsive disorder.
Because it is accompanied by other disorders, Tourette Syndrome may not be diagnosed or may be misdiagnosed. When it is diagnosed, doctors must assess the child for other commonly co-occurring conditions to ensure a holistic treatment plan is developed.
2. Cause is unknown
Scientists do not yet know the cause of Tourette Syndrome; however, research suggests that it is genetically inherited. Boys are more likely to exhibit symptoms of Tourette’s than girls are, and it is inherited as a dominant gene. Environmental factors such as smoking during pregnancy, complications during pregnancy, low birthweight, and infection may be associated with Tourette Syndrome.
Tourette Syndrome becomes evident during childhood or adolescence. The symptoms of Tourette Syndrome sometimes decrease during early adulthood, however, in some cases they continue or worsen.
3. Does not affect intelligence
While there is no difference in the intelligence of someone who has been diagnosed with Tourette Syndrome and anyone else, persons diagnosed with Tourette Syndrome may have special educational requirements. The nature of Tourette’s symptoms can be disruptive to education, and parents should work with schools to develop individual educational plans for their child.
4. Can be treated
Although there is no cure for Tourette Syndrome, there are multiple treatments. The treatment program depends upon the individual and their unique situation. If the patient’s tics interfere with their daily lives, treatments such as deep brain stimulation, medication, behavior modification, or speech therapy can be helpful.
Often, people with Tourette Syndrome do not require treatment. More often, people with Tourette Syndrome must advocate for themselves to ensure that friends, classmates, and co-workers understand what Tourette Syndrome is and what it is not. Those with Tourette Syndrome must learn to proactively make use of their strengths in their daily lives.
Written by Rebecca K. Blankenship, B.Sc.
Data and Statistics on Tourette Syndrome | CDC. Centers for Disease Control and Prevention. https://www.cdc.gov/ncbddd/tourette/data.html#ref. Published 2019. Accessed June 1, 2019.
FAQs – Tourette Association of America. Tourette Association of America. https://tourette.org/about-tourette/overview/faqs/. Published 2019. Accessed June 1, 2019.